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NON-PROFIT INDUSTRY NEWS
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Climb for a cure

Newport Beach-based organization raises funds to cure Duchenne’s Disease.

By: Schardé VallonePublished: June 21, 2011 03:00 PM

On Thursday a team of six men, three of whom are from Orange County, will climb Teton Range in Wyoming’s Grand Teton National Park. This first-ever commercial climb of The Grand Teton will benefit CureDuchenne, a national nonprofit organization based in Newport Beach.
    
In addition to raising funds to aid in the research of Duchenne Muscular Dystrophy, which affects about every one in 35,000 males, CureDuchenne also works to increase awareness of the disease. In fact, six research projects have been implemented into human clinical trials due to the backing of CureDuchenne. “Pick Your Peak: Climb to Cure Duchenne,” a program in its third year, has already raised over $400,000 from past climbs up Mt. Shasta and Mt. Rainier.
    
Paul Miller of Corona del Mar, team leader of the group of climbers and co-founder of CureDuchenne, has been personally affected by the disease – his 14-year-old son has been diagnosed with Duchenne’s.

“Time is against us. The disease is fatal,” Miller said; however, there is hope. “What several research projects are yielding … drives us to never give up,” he continued.
    
Completing the team of mountaineers are Scott Niedermayer and Tony Hynes of Newport Beach, Florida’s Dr. Barry Byrne and Bill Procko, and Christian Schauf from Minnesota. They plan to complete the first day by climbing to high camp (11,000 ft.) and reach the peak on Saturday.

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