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HEALTH
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May is Huntington’s Disease Awareness month

The Orange County chapter is helping bring attention to the degenerative brain disorder for which there is no cure.

By Susan BelknappPublished: May 08, 2009 02:15 PM

Huntington’s Disease is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. The Irvine-based Orange County chapter is participating in the campaign to get awareness out about the condition.

Huntington’s Disease Society of America (HDSA) and its Orange County affiliate are promoting the recognition of May as Huntington’s Disease Awareness month with the debut of a new high-profile PSA TV and print campaign featuring Olivia Wilde, who plays “13” on the hit show “House” and her co-star, Peter Jacobson, (“Dr Taub”).

Wilde and Jacobson will appear in a 30-second PSA and in a print ad designed to build awareness of Huntington’s Disease (HD). Since HD has a profound effect on the entire family (and it is hereditary), it’s affects are devastating emotionally and economically.
 
Two Phase III Trials are currently underway and others pending FDA approval. In August, the FDA approved the first therapy specifically for people with HD, Xenazine, to treat chorea. The HDSA research and lay communities are hopeful that these new trials will yield additional substances to treat HD symptoms, and improve the quality of life of people with HD and the families who support them.

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